| Stephen's Big Shave |
Event:Stephen Finally Does It! |
| Date: 17-03-2010 |
|
| 
The BEFORE shot!
So far I have raised:
1,160.00
|
|
My Personal Message
Hi Everyone
Thanks for visiting my personal fundraising page. The Cystinosis Foundation Ireland charity is a very worthy cause and I would very much appreciate your support in helping me to raise funds for this charity that is very close to my heart. My God-daughter, Ciara, has Cystinosis and that alone is motivation enough for me.
Please read a few words about the charity that I have chosen to support below. You can donate using the "sponsor me now" button below via credit or debit card. You can be assured that your transaction on the mycharity.ie website is very secure. You will automatically receive an e-mail from me thanking you for your support, and acknowledging the amount of your donation. Any donation no matter how small is hugely appreciated.
Many thanks in advance for your support and I am sure you will all have a laugh when you see the new "bare" me!
Stephen
|
About my charity
Cystinosis Foundation Ireland
Cystinosis Foundation Ireland is an Irish registered charity, registered number CHY15517. It is an all volunteer, non-profit organisation dedicated to providing services for those suffering from Cystinosis. There are currently six children and three adults diagnosed and living in Ireland. Cystinosis Foundation Ireland was founded in 2003 by these patients and their families and friends with the following four aims: Research Support: The Foundation raises funds to promote research into the causes and improved treatments of Cystinosis and to hopefully one day find a cure.
Patient/Parental support Providing an Internet website with information on the disease and any updated information or news as it becomes available. Education & awareness about the condition to the Medical Profession and the public. Almost nothing is known about the condition in the general public and indeed the Medical Profession. Many patients have experienced misdiagnosis, sometimes taking months and on occasion, years to be correctly diagnosed. Early diagnosis is crucial so that cysteamine therapy (Cystagon™) is started as soon as possible.
Click here for more information |