Kitty O'Connor's Run for Alpha-1 Event:Run for Alpha-1
Date: 25-02-2012



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So far I have raised:
€22.00

This fundraising page is now completed and it is no longer possible to sponsor this fundraiser via this fundraising page.
Money raised off-line: €0.00
Money raised on-line: €22.00

My Personal Message

Hey Guys,

Thanks for visiting my personal fundraising page. The Alpha One Foundation charity is a very worthy cause and I would very much appreciate your support in helping me to raise funds for this charity.

Please read a few words about the charity that I have chosen to support below. You can donate using the "sponsor me now" button below via credit or debit card. You can be assured that your transaction on the mycharity.ie website is very secure. You will automatically receive an e-mail from me thanking you for your support, and acknowledging the amount of your donation. Any donation no matter how small is hugely appreciated.

Many thanks in advance for your support,

Kitty

About my charity

Alpha One Foundation

The Alpha One Foundation was established in 2001 to promote research into Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the diagnosis, treatment, life expectancy and quality of life of people with this inherited condition. Alpha-1 Antitrypsin is an important protein produced by the liver, which is released into the bloodstream and travels to the lungs.  Once inside the lungs it provides protection from the destructive effects of infections and harmful irritants, particularly tobacco smoke.

Aims:  

  • Increasing awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1) amongst the medical profession and the general public.
  • Diagnosis of Alpha-1.
  • Providing patient support.
  • Access to clinical trials for emerging therapies aimed at Alpha-1.

 

National Screening Programme:


In 2004 we began a national screening programme funded by the Department of Health and Children to reduce the under diagnosis and misdiagnosis of Alpha-1. This targeted detection programme is the only national screening programme for Alpha-1 in the world. We follow World Health Organisation (WHO), American Thoracic Society (ATS), and European Respiratory Society (ERS) guidelines which recommend testing of:

• all chronic obstructive pulmonary disease (COPD) patients,
• poorly controlled non-responsive asthmatics
• cryptogenic liver disease patients
• As it is a hereditary disease all first degree family members of individuals with Alpha-1 should also be tested.



Click here for more information

My Online Sponsors to Date

Name Date Type Amount Comment
Crea Crosbie Sheahan 11-02-2012 Donation €22.00 Very best of luck with the fundraiser Kitty..
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