Neurofibromatosis Association of Ireland

The Neurofibromatosis Association of Ireland was formed in 1985.  It is a registered Charity (No. CHY6657) and Company Limited by Guarantee. Ref No. 299875.

The Association has a management committee of volunteers who have a close personal involvement with the disorder either through their family or their professional work.  The Association not only complements the State provisions but also is the dominant provider of services to the 2000+ sufferers and their families in the Republic of Ireland. Association Office is located at The Carmichael Centre, North Brunswick St, Dublin 7.  It has one fulltime employee, four family Support persons who are supported by voluntary help from within the committee.  The association provides the following services:

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  24-hour Help Line over 7 days,


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  Information Packs


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  Referral service - in cases where medical intervention is not available in Ireland 


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  “free part-time counselling service”. 


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  Web Site


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  Assist research projects


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  Quarterly Newsletter


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  Respite


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  Clinical Guidelines for management of the condition to Patients, Health Professional and Hospitals


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  Home and Hospital visits.