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Cystic Fibrosis Association of Ireland



Organisation ID: CHY6350

The Cystic Fibrosis Association of Ireland, which is totally dependent on fundraising and volubntary donations, is the body responsible for the provision of a wide range of services to the Cystic Fibrosis community in the Republic of Ireland.

We provide:

  • Assistance, financial or otherwise, to persons with cystic fibrosis and their families.
  • Funding for medical research into the cause and cure of this incurable disease.
  • Funding of specialist multidisciplinary posts in hospitals throughourt Ireland.
  • A domiciliary physiotherapy service to children with cystic fibrosis.
  • Campaigning and lobbying at political level for improved treatments and facilities for persons suffering with cystic fibrosis.

 

Cystic Fibrosis is Ireland's most common genetically inherited disease. in ireland, we have the highest incidence of the disease in the developed world, with 1 in 19 members of the population being carriers of the recessive CF gene. it is when two carriers of the recessive gene parent a child together, there is a 1 in 4 risk of the child having the disease. There is nocure at present for this disease.